Professor Sharona Hoffman, Co-Director of the Law-Medicine Center, recently published an article, “What Genetic Testing Teaches about Predictive Health Analytics Regulation.”
The paper argues that like genetic testing, predictive health analytics raise significant concerns about psychological harm, privacy breaches, discrimination, and the meaning and accuracy of predictions. Consequently, as alluring as the new predictive technologies are, they require careful consideration and thoughtful safeguards. These include changes to the HIPAA Privacy and Security Rules and the Americans with Disabilities Act, careful oversight mechanisms, and self-regulation by health care providers. Ignoring the hazards of long-term predictive health analytics and failing to provide data subjects with appropriate rights and protections would be a grave mistake.